CIDP Reporting Process

Overview

Executive Summary

Pull word cloud from quid’s Word Cloud module with the following filters:

• Topic: Other Efgart Indications
• Themes: CIDP
• Terms EXCLUDE:
  • market

Pull platform conversation volume from Quid as well with following filters:

• Topic: Other Efgart Indications
• Themes: CIDP
• Terms EXCLUDE:
  • market

Need to add FB and TikTok data (#'s) manually to the platform SOV, then calculate %'s

Key Topics and Themes

For branded, pull a wordcloud on Quid with the following filters:

• Topic: Other Efgart Indications
• Themes: CIDP
• Sources:
  • Forum
  • X/Twitter
  • News
• Terms exclude
  • Market

For unbranded, pull a wordcloud on Quid with the following filters:

• Topic: Other Efgart Indications
• Themes: CIDP
• Sources:
  • Instagram
  • YouTube
• Terms exclude
  • Market

Then use white square to blank out irrelevant terms.

Audiences

Sentiment

Use Quid to pull stats with the Sentiment module.

For HCP/industry, use the following filters:

• Topic: Other Efgart Indications
• Themes: CIDP
• Terms:
  • research
  • fda
  • study

For patient/advocate, use the following filters:

• Topic: Other Efgart Indications
• Themes: CIDP
• Terms:
  • cidpfighter
  • cidpwarrior
  • cidpawareness

For shining through cidp, use the following filters:

• Topic: Other Efgart Indications
• Themes: CIDP
• Terms:
  • shining through cidp
  • shiningthroughcidp

Influencers

For Industry/HCP, use Quid with the following filters on the Authors module:

• Topic: Other Efgart Indications
• Source: Twitter/X, YouTube
• Themes: CIDP

For Patient/Advocate, use Brand24 to pull TikTok people:

Then go through Instagram data on Brand24 and Quid to pull top authors. Then manually fill in the chart.

• Need to add these to the list ✅ 2024-04-23
  • https://www.instagram.com/averiewithcidp/ ✅ 2024-04-23
  • https://www.instagram.com/michaelklim1/ ✅ 2024-04-23
  • https://www.instagram.com/debrafitnesspro/ ✅ 2024-04-23
  • https://www.instagram.com/feastandfarm/ ✅ 2024-04-23

X / Industry & HCP Discussions

Use Quid to pull data from stream, using the following filters:

• Topic: Other Efgart Indications
• Source: Twitter/X
• Themes: CIDP

Pull # mentions and % over previous period from Summary Metrics module:

Pull top hashtags from the Word Cloud module:

Media Highlights

This slide is mostly based on traditional media. Use Quid to pull data from stream, using the following filters:

• Topic: Other Efgart Indications
• Source: News
• Themes: CIDP

Patient Experience

Facebook Groups

Use Facebook Groups Data Mining and Analysis Guide to pull data into this spreadsheet.

Need to categorize topics/treatments/symptoms/conditions mentioned, and then use OpenRefine to do a word facet on the Topics, Treatments, Symptoms, and Conditions mentioned, using the following expression: value.split(',')

For overall metrics, pull from this tab.

Can use OpenAI to generate key findings (but you should also double check for accuracy) and summaries from the post texts after filtering data through the spreadsheet.

Reddit

Use Quid to pull data from stream, using the following filters:

• Topic: Other Efgart Indications
• Domain: Reddit
• Themes: CIDP

[Pull # mentions and % over previous period from Summary Metrics module.](<Pull # mentions and % over previous period from Summary Metrics module: >)

Pull key themes with Quid AI Summary.

Pull top terms from Word Cloud module:

Instagram

Use Quid to pull data, using the following filters:

• Topic: Other Efgart Indications
• Sources: Instagram
• Themes: CIDP

Pull # mentions and % over previous period from Summary Metrics module:

Pull top hashtags from the Word Cloud module:

Use Popular Posts and Stream modules to pull data/screenshots:

TikTok

Pull post #‘s for hashtagscidpawareness andcidpwarrior from their pages:

• https://www.tiktok.com/tag/cidpwarrior
• https://www.tiktok.com/tag/cidpawareness

Use Brand24 for pull overall # of posts:

Then scan through the feeds to pull screenshots from reporting period.

Lastly, look at the hashtags used in posts to determine “Popular Hashtags”. Then plug them into word cloud generator, here, along withcidpawareness andcidpwarrior.

Other Platforms

Use quid with the following filters to pull additional highlights, using Stream module:

• Topic: Other Efgart Indications
• Sources: Twitter/X, YouTube, Blogs, Microblogs, News, Other Social Networks, other
• Themes: CIDP
• Terms:
  • cidpwarrior
  • cidpwarrior
  • cidpawareness
  • cidpfighter

Also use Brand24 to see if anything shows up.

Additionally, search the above Terms in YouTube directly as well as CIDP.

Shining Through CIDP

Owned Content

Go through owned channels’ content and pull screenshots/highlights:

• Facebook
• Instagram

Facebook Groups

Manually search for Shining Through CIDP and #shiningthroughcidp on the following Facebook Groups:

• GBS/CIDP support group
• Chronic Inflammatory Demyelinating Polyneuropathy Support - CIDP

Instagram + Reddit

Use Quid stream to pull screenshots:

• Topic: Other Efgart Indications
• Terms:
  • Shining Through CIDP
  • shiningthroughcidp

Use Brand24 to pull screenshots:

• Topic: CIDP and ITP
• Terms:
  • shiningthroughcidp {OR} shining through cidp